NPCA Patient Survey

What is the National Prostate Cancer (NPCA) Patient Survey?

Men with localised prostate cancer who receive radical surgical or radiotherapy treatments usually survive for many years with the potential side effects of these treatments including urinary, bowel and sexual dysfunction. The NPCA Patient Survey is designed to determine patients’ views of their experience of care and outcomes following diagnosis and treatment.

Patients are asked questions about their quality of life, side effects, sexual/urinary/bowel complications, the information they received about their prostate cancer diagnosis and treatment options, and how the decision about their initial treatment was made.

Why have I been invited to participate?

Men who were diagnosed with prostate cancer between the 1st April 2018 and 30th September 2018 in England and Wales are being sent a questionnaire at least 18 months after diagnosis. This includes men who underwent radical surgical or radiotherapy treatments.

Previously the NPCA sent a survey to men diagnosed between 1st April 2014 and 30th September 2016.

More information about the NPCA Patient Survey can be found here:

NPCA Patient Survey Information Leaflet

NPCA Patient Survey Information Leaflet_Welsh

NPCA Patient Survey Privacy Notice

NPCA Patient Survey Privacy Notice_Welsh

A summary of the results from the NPCA Patient Survey can be downloaded here:

NPCA Patient Survey Slide Set

Update from the NPCA team, April 2020:

We would like to thank all men who have completed the NPCA survey to date resulting in an impressive average response rate of 73% (patients diagnosed between April 2014 – September 2016). The results from this survey provide a unique insight on the quality of care received and the impact of radical treatment on daily lives.

Results from the patient survey including mens’ views of their experience of care and their outcomes following treatment were published in the NPCA Annual Report 2018 and a patient summary. Individual results by NHS provider can be found here.

With your help, we look forward to building further this important work as the audit continues. The next round of data collection for men diagnosed from April 2018 onwards is currently in progress and the results will be published in the 2020 annual report.