Men with localised prostate cancer who receive radical surgical and radiotherapy treatments usually survive for many years with the potential side effects of these treatments including urinary, bowel and sexual dysfunction. The NPCA Patient Survey started in October 2015 and will determine patients’ views of their experience of care and outcomes following diagnosis and treatment.
Patients will be asked questions about their quality of life, side effects, sexual/urinary/bowel complications, the information they received about their prostate cancer diagnosis and treatment options, and how the decision about their initial treatment was made.
Men newly diagnosed with prostate cancer between 1st April 2014 and 31st March 2015 in England who underwent radical treatment will receive a survey approximately 18 months after diagnosis. In the second year this will include men diagnosed between 1st April 2015 and 31st March 2016 who are candidates for radical treatment (irrespective of treatment).
Update from the NPCA team, December 2016:
‘We would like to thank all men who have completed the NPCA survey to date resulting in an impressive average response rate of 73% (patients diagnosed between April – October 2014). The results from this survey provide a unique insight on the quality of care received and the impact of radical treatment on daily lives.
The first anonymised results were published in the NPCA Annual Report on the 14th December 2016 here. A patient summary is available to download here. With your help, we look forward to building further this important work as the audit continues.’