What is the National Prostate Cancer Audit?
We need better information about the quality of services and care provided to patients with prostate cancer. The National Prostate Cancer Audit collects information about the diagnosis, management and treatment of every patient newly diagnosed with prostate cancer and their outcomes. Its findings will help to improve clinical practice, which will save patients’ lives and improve quality of life.
More information about the National Prostate Cancer Audit can be found here.
What information is collected?
We use information about patients that has already been collected by national organisations in England and Wales. These organisations include the National Cancer Registration and Analysis Service (NCRAS) and the Cancer Network Information System Cymru (CaNISC) in Wales. These organisations are allowed to collect data on patients diagnosed with cancer.
Information about the National Cancer Registration and Analysis Service including why information about you and your cancer is recorded, how this information is used, and how, if you wish, you can see your information or have it removed can be found here.
What is the National Prostate Cancer Audit Patient Survey?
Men with localised prostate cancer who receive radical surgical and radiotherapy treatments usually survive for many years with the potential side effects of these treatments including urinary, bowel and sexual dysfunction. The NPCA Patient Survey started in October 2015 and will determine patients’ views of their experience of care and outcomes following diagnosis and treatment.
Patients will be asked questions about their quality of life, side effects, sexual/urinary/bowel complications, the information they received about their prostate cancer diagnosis and treatment options, and how the decision about their initial treatment was made.
Men newly diagnosed with prostate cancer between 1st April 2014 and 31st March 2015 in England who underwent radical treatment will receive a survey approximately 18 months after diagnosis. In the second year this includes men diagnosed between 1st April 2015 and 31st March 2016 in England and Wales who are candidates for radical treatment (irrespective of treatment).
More information about the National Prostate Cancer Audit Patient Survey can be found here.
Update from the NPCA team, December 2017:
‘We would like to thank all men who have completed the NPCA survey to date resulting in an impressive average response rate of 74% (patients diagnosed between April 2014 – March 2016). The results from this survey provide a unique insight on the quality of care received and the impact of radical treatment on daily lives.
The first anonymised results were published in the NPCA Annual Report on the 14th December 2016 here. A patient summary was published in March 2017 and is available to download here. With your help, we look forward to building further this important work as the audit continues.’